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Thursday, September 9, 2010
Is My Mom Just Lazy?
It was a beautiful crisp, sunny winter morning, my family was getting ready to go to church. From my bedroom, I hear the words that hit me like a brick. IS MY MOM JUST LAZY? My son was speaking to my husband wondering if Mom was going to be joining the family for church this Sunday. My reaction at first was utter shock! My first instinct was to jump out of bed (not literally jump because I would of fallen on my face) and scream at the top of my lungs...."MOM FEELS TERRIBLE, SHE IS SO TIRED AND JUST GOT OFF A MONTH OF IV AND ORAL STEROIDS"!1!!1!! I was lucky if I had the strength to get my head of my pillow that particular morning. Then there was another feeling that overcame me, just lay in a ball and cry. My son thinks I'm lazy, I am 36 years old and feel like 90. This is what parents struggle with dealing with Multiple Sclerosis.

How can we be effective parents, when we at time do not have the strength to care for ourselves? I was sure I did all the right things, as a parent bring MS into the family. I took my husband and children to all the MS family functions, attended family workshops, my children did workshops with children their own age. But the truth is, my son is 10 years old, and this disease is difficult to deal with no matter the age or how educated you are about the subject. The issues are the hurt feelings, when Mom cannot be there for a special occasion, or a big baseball game. They are still our children whether we are walking or in a chair, and we are still their parents and can be there for them when we can. I talked with my son for at least an hour that day, I let him know I love him and I will try to be there with him when I can. But, sometimes Mom just doesn't feel good and needs to conserve energy. I explained to him, MS makes Mom tired and take the energy right out of me, but, when I can be there I will.

It is very difficult dealing with any chronic disease. Multiple Sclerosis hits us when we are the prime of our lives, raising children, maintaining careers. Then one day you wake up and you realize you're not the parent, spouse, friend, you once were. I believe we can all be parents to the best of our ability as long as we love and care for our children. I know that I will never again be offended if my son makes another comment. I cannot be offended. Those our his true feelings, and as a family, we need to share what we are feeling. We have all learned to be patient with each other, and not let the Monster get the best of us. MS has and will continue to change our lives as a family. But it will never change the people we are, or the love we have inside of us. Just being ourselves and keeping open communication within our family , will make us be the parents our children need.


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