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Tuesday, March 9, 2010
[logo] Multiple Sclerosis Assistance Fund
For more information about the Direct Assistance Fund, to apply, or to find out how you can make a donation, call 1-800-FIGHT MS.

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April 15th 2010

Did you know it costs an estimated $50,000 each year, with a lifetime cost of more than $3.2 million, to pay for the medications, medical equipment, therapy and other costs associated with treating multiple sclerosis?

For many, the out-of-pocket costs associated with treating MS can pose a significant, sometimes insurmountable, financial hardship - one that often means patients can't afford all the care they need.

Assistance is available - if you're willing to advocate for yourself. Take it from Jenny.

Diagnosed at age 25, Jenny has lived with MS for 15 years. Today, her symptoms have progressed and, with limited mobility, she has determined that she needs a scooter to get around.

Determining how to pay for the scooter, however, was another story. After contacting several providers, Jenny was shocked at how expensive scooters were to purchase. With her limited income and the cost of her disease, she couldn't afford to buy one.

Jenny was faced with a decision: give up on accessing a scooter, stay at home, rely on others to get to appointments and quit her part-time job. OR, keep fighting to protect her independence. Jenny chose to fight. She learned about the Direct Assistance program offered by the National MS Society, Greater Illinois Chapter. By accessing support from the program's coordinator, she learned about additional resources available through insurance and other sources.

She continued to work with her doctor and physical therapist to secure the prescription and evaluation needed to secure durable medical equipment from a vendor.

Thanks to the Direct Assistance Program, she could access the funds to cover the co-pay for her new scooter. It didn't happen overnight and the process wasn't without its share of frustrations, but because she stuck with it, today Jenny has her scooter - and the ability to stay active in her community.

You can be an advocate for yourself as well. If you have financial needs related to your MS, contact the Chapter's Direct Assistance program for help. No one should go without the services they need to stay healthy and active.

You can also be an advocate for others by supporting the Direct Assistance program. The program is funded through the State Income Tax Check Off program.

You can donate to the Multiple Sclerosis Fund when you file your Illinois Income taxes or you can donate by calling the Chapter at 1-800-FIGHT MS.

Link to Direct Assistance on the National Multiple Sclerosis Society Greater Illinois Chapter Web Site.

Services covered include:

  • Counseling: Sessions with a psychologist or social worker

  • Respite Care: Short term care for persons living with MS (either in home or at an outside care facility)

  • Transportation: Arranged rides for medical appointments or support groups when other transportation is not available

  • Durable Medical Equipment: Assistive technology such as wheelchairs, scooters, and bathroom equipment

  • Care Management: Consultations with a case manager to help secure social security benefits, subsidized housing, or other assistance

  • Incontinence Supplies: Incontinence supplies delivered directly to a client’s home

  • Homecare: Temporary in-home companion care, personal attendant, or nursing services

  • Home Modifications: Minor home modifications for increased accessibility

  • Vehicle Modifications

  • Cooling Aides:

  • Physical & Occupational Therapy:
Questions? Call 1-800 FIGHT MS or log onto www.msillinois.org
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© 1999-08   Please familiarize yourself with our  Disclaimer  prior to accessing any resources on this website. As always this material is provided as general educational information. It is not intended as advice for individual patients. Comments are based on professional experience and do not represent therapeutic recommendation or prescription. Please contact your physician for specific recommendations.