| Network Programs Available for Families with a Child or Teen with MS |
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"Young Persons with MS: A Network for
Families with a Child or Teen With MS"
is a support network that provides multiple
program options for families living
with a child or teen who has been diagnosed
with multiple sclerosis.
The program is a collaborative effort
between the National Multiple Sclerosis
Society and the MS Society of Canada.
Together we recognize the unique
needs of these children and realize that
their parents and siblings may need a
variety of support services and programs.
The network targets two distinct populations:
- Children with MS (18 and under)
- Parents of a child or teen with MS
Network Programs
Parent Teleconferences
Teleconferences featuring specialists in
the field of pediatric MS are offered for
parents. Topics typically relate to
research, treatment, cognitive issues,
and children's rights within their school
system.
E-mail Group for Parents
The Network connects parents through
an e-mail list group where they can
share concerns and information, and
develop a support network.
E-mail Group for Teens with MS
The Network connects teens with MS
through an e-mail list group where they
can share concerns and information,
and develop a support network.
Short-Term Counseling
A licensed social worker is available to
provide short-term telephone counseling
at no cost to families living with a
child with MS.
Parent Handbook
Kids Get MS Too: A Guide for Parents
Whose Child or Teen has MS, is now
available. This handbook contains articles
on a variety of topics written by specialists
in childhood MS.
Activity Book for Children
Mighty Special Kids is a 20-page activity
book for children ages 5-12 with MS.
The book contains educational games,
activities and age-appropriate articles to
help children better understand their
diagnosis.
Parents can receive information about
MS and local resources from the
Chapter by calling 1-800-FIGHT MS. |
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